Sunday, July 24, 2011

Thursday, July 14, 2011

Raynauds?. Yucky

This is just a quick post. I think I mentioned some time ago about about having burning/numb feet and hands. This has stayed the same in my hands but is getting worse in my feet. I also still have fungus under my toe nails which is icky. From what I have read Peripheral Neuropathy is the reason that diabetics sometimes have to get limbs amputated. Clearly I have a circulation problem. Wondering if anyone has any advice? My fingers stay wrinkly like this all day everyday and my toes are really red and sore and are blistering too .... sad state of affairs I'm afraid. They do seem to be a little better if I can keep them warm but it's an impossible task most of the time. Anyway sorry for the gross photo but really thought people should see this!

It's a few days since I posted this about my feet and fingers and I have now talked with my Dr and he says the red swollen toes are RAYNAUDS as suggested by Kirsten in the comments. My Dr is arranging for a podiatrist to come and see me and hopefully find a way to help the situation

Friday, July 8, 2011

Volatile Solvents, my needle in a haystack!

Wow, what a day! Today I think I found the needle in a haystack ... the cause of my ME/CFS!!!
Since getting ill 18 months ago I have spent what little energy I have on searching for answers. I have spent thousands of dollars on every test my Doctor recommended as well as any others that seemed plausible. Every time I would get a new test I would eagerly await the results hoping I would test positive for something, but they always would come back negative ... Until now!

I have tested positive for Volatile Solvents!!

Before getting ill I had been working as a graphic designer for a signage company. I sat in a small office with poster printer which ran solvent inks. The machine stank and everyone in the building frequently moaned about it. In terms of health and safety regulations the machine should have been in its own space with extractor fans etc but instead it was just plonked near my desk. Several years of this situation has obviously caused some serious exposure issues.
The little reading I have done so far confirms that this type of exposure causes neurological damage and results in many symptoms I currently have such as, muscle atrophy, dysautonomia, mitochondrial failure, heart problems, brain fog, memory loss, brain damage of various kinds, fatigue, headache, dizziness, impaired vision, muscle weakness, loss of sensation, balance problems, all the typical ME/CFS stuff …
I believe it is possible to detox to a degree with the help of glycine and sulphates – amino acids but I need to look into that further. I have read that a lot of the damage is most likely permanent unfortunately.
Anyway, lots more reading to do now. Anyone who knows anything about this PLEASE leave me a comment. It‘s great to have a diagnosis, shame is a crappy one!

Oh and if you are interested to read more yourself then have a look at the lab that did my test -

And here are my test results, if you click the image you will see a large version.