Tuesday, December 27, 2011


Back in November I asked if anyone would be able to help me with some research for my insurance claim. I was exposed to chemicals in my job and this is the reason I believe that I came down with ME/CFS. Anyway, I was overwhelmed with the response ... many people went to great lengths to help me and as a result I now have a good foundation of information and reports to support my claim. I have also managed to secure a lawyer who is willing to just do the basics and charge me an hourly fee, so I don't need to sign any scary binding agreements with them. I have also been lucky enough to enlist the help of some of the most well respected specialists in the field of ME/CFS to write expert testimony for me. So .. now I just need to pull all these pieces together in a coherent way and I can lodge my claim. Yippee!!

Thanks a zillion to anyone who has helped me along the way .. I do appreciate just how much time and effort it takes to extend yourselves in such as way.

Saturday, December 17, 2011

One desperately ill woman ...

Maria is a friend of mine from facebook. She suffers from an illness called Lyme Disease which largely overlaps with my illness. She and I share many of the same symptoms and lack of quality of life ... only things are MUCH worse for Maria.

Here is an excerpt from a recent post of hers:
I desperately need safe housing where I can continue my fight against late stage neurological Lyme disease. I am 99 percent bedridden and I live in a very old trailer that is filled with mold and mildew. The bathroom wall is turning to mulch and the floor rotted through to the hall closet. I cannot afford to use the central heat as the unit is antiquated and costs half of my monthly income to run. I have no insulation and I can see the wind blow in the kitchen behind the stove with the doors shut. I get birds inside with the doors closed as well. The electric sockets on one side of the trailer get hot enough to burn when you use them or run the washing machine. I am in a wheelchair and can not fit it in the the bedrooms or the bathroom and I have no wheelchair ramp so I have to scoot on the floor to get out the front door and down the steps.
I have been dreaming of what it would be like to be in a clean house or apartment but I live solely on disability which is less than $700 dollars a month. My hope is that someone will be able and willing to help me with this dream so that I can get well and pay it forward to others in hazardous situations.

I have just made a donation to help Maria. I know it's so close to Christmas and most of you have already spent up big, but please stop for a moment to think about what kind of Christmas Maria is going to have. If you are in a position where you can give a few $$$ then PLEASE do so, you can donate anonymously if you wish. If you are unable to donate then you can still help by spreading the word ...

The link to Maria's donation page is here - http://www.giveforward.com/healthyhandicapaccessiblehousing

Thanks, and Merry Christmas to all :)

Thursday, December 8, 2011

Another year goes by

Today is the eleven year anniversary of my partner Robert's death. I just read back over what I posted last year about this event and nothing has really changed, I feel the same today as I did a year ago .... so rather than repeat the same dribble .. please ready what I wrote last year, I think it says it all, and probably better than I could today ...

The post is here - http://cfsngay.blogspot.com/2010/12/feeling-truely-blessed.html

Oh, and the photo above is me and Robert in Nepal the year before he died.