Monday, November 7, 2011

Art 4 Who?

Quite some time ago I set up the ‘Art 4 XMRV’ project. The idea was that artists and crafty people could contribute their images and I would post them on our Redbubble site for sale as gift cards, prints, shirts etc. All the money raised would be donated to support ME/CFS research. The project has been quite successful in both giving our creative community an outlet for their work and also helping to raise some much needed funds.

Due to the recent developments with XMRV and the Whittemore Peterson Institute I have decided to re-brand Art 4 XMRV to Art 4 ME. It’s more general and inclusive and seems to please more people. We were donating all profits to the WPI but because the community is now very divided I feel the best thing to do is to just simply ask where you all think the money should go?

So, please leave a comment with your suggestion for who we should now donate out profits too. We don’t make a lot of money so unfortunately we will have to just choose one organization to support rather than splitting the money between several.

Due to annoying restrictions on facebook, the only way I could change the name there was to delete a whole bunch of people (you can only change the name of a page if it has less than 100 members). So, PLEASE go back to our facebook page and see if you are still a member or not and ‘like’ the page if need be. It’s a good way to see when new work is added or when we have specials or other info to tell you. The facebook page is here - (yes the url still says art4xmrv but the page itself is now Art 4 ME).

Coming up to Christmas we are trying to encourage all artists to contribute images suitable for Christmas cards, so if you have something then please get in touch. We will also be adding a few Calendars for sale in time for the New Year.

Finally, you can find the new Art 4 ME site here -

P.S. don’t forget to leave your message with suggestions for who we should donate our money to!


  1. simmaron research [DR.Daniel Peterson] and/or CFS/Me knowledge center website as they are doing alot to raise awareness and have helpful/informative videos by Dr.Nancy Klimas and others:)

  2. Hi Lee Lee

    Thanks for that. How about waiting a few months to see what happens in terms of research? Hanging on to the little pot of money, and see what direction it all takes.
    I wonder also about maybe donating to different institutions/area of research, say a couple each year.
    And how about supporting people who advocate for us independently? Thinking about people like Mindy etc

    What do people think?

  3. I 100% agree with J.L. Marotta.
    Thanks for all you do Lee Lee!

  4. I don't have an opinion on this, just a suggestion :)

    What about the Alison Hunter Memorial Foundation. They helped fund the recent bond studies on the immune aspects of M.E/cfs.

    By the way I think it's wonderful that you set this up. XMRV was a bit of a disappointment, since it looks like a dead end but at least it got us a lot of publicity.

    :) Whatever you decide will be right.

  5. Hey honey

    I don't think I can decide yet. I don't think you need to decide today. I would say Simmaron, but I'm a bit gun shy.

    Perhaps we can divvy it up between research and services?

    Sorry if that was useless help.


  6. I also wanted to say thanks to you for all you do for us.We know you are so unwell yourself and yet keep struggling and continue to put together such a great site as "art4m.e.", this blog are so very appreciated,I just wanted to say that. Thanks Lee Lee for all you do!

  7. I recently bought some gorgeous greeting cards from Art4ME and was reminded of what an awesome idea this is, Lee Lee!! I had sort of forgotten about it - (just drowning in too much going on right now). I would also like to upload some of my own photos there to help out but probably won't have the time/energy until after Christmas.

    I think the CFIDS Association of America is a very worthy place to donate $ to. Even though it is an American organization, they have sponsored lots and lots of great research over the years. They are also instrumental in educating the public and the medical community. Here's an overview of their research program:

    Thanks for all you do, Lee Lee!! Sorry to hear you're going through a rough time right now.