Sunday, August 28, 2011
A week ago I went and had an ultrasound done on my stomach. As most of you will know I have had ongoing stomach issues that contribute largely to my illness. The scan was to check that I don’t have an aortic aneurysm or tumor etc. The trip out to go and get the scan was more terrifying to me than the possibility of them actually finding something scary. In the end a 15 minutes scan took 5 hours because in order to leave the house I needed assistance from an ambulance (they physically had to carry me back up the stairs to my apartment, four of them, one on each limb). Because I wasn’t an emergency I basically had to take the ambulance whenever they had one free … so they picked me up 2 hours before my appointment initially and then came to get me 3 hours after my scan was done. It was a very very long and exhausting day, but I am proud of myself for getting through it. My Dad came along and acted as my voice which was a huge help. Anyway … the only thing the scan showed was some cysts and vascular calcification on both kidneys. I have a phone appointment with my Dr next week to find out if there are any implications of this. From what I have read online it’s no big deal really. So the mystery of what is causing all the stomach pain continues unfortunately, but at least I don’t have something that is going to kill me!
The week following my appointment I have been pretty badly crashed although not as badly as I had expected. I hate times like this when all you can do is nothing at all … rest rest and more rest. Five days without a shower (again), no reading, very little watching TV or being on the computer.
The last 2 days I have finally bounced back so have been trying to play catch up on everything ….
I realized this morning that even on my better days it’s still all about playing catch up because if I shower today then I will need total rest for a few hours afterwards and then will only be able to do small essential things like eat and probably watch TV … so the other stuff I’d like to do today such as put my clean laundry away will have to wait till tomorrow … and then it’s the same scenario all over again … so everyday is catch up!! It’s like we have to operate on a Dali floppy clock … we should start a ME/CFS time system, one hour for us equals 24 hours for ‘normals’. Hahahaha
On a parting note I just want to say that I am excited because I have now receieved all my supplements to start on the Simplified Methylation Protocol. I will most likely post about this next time and explain what it is and how I am going. It’s good to have something to feel excited about !!