Wednesday, May 4, 2011
12th May is International Awareness day for ME/CFS.
I have been severely ill with Chronic Fatigue Syndrome since October 2009 and to be blunt about it, I HAVE HAD ABOUT ALL I CAN TAKE !!!!!! There are an estimated 17 million people worldwide suffering with this illness, some are still able to continue with life to a lesser degree and others like me are totally housebound or even totally bedridden. I have lost my job, my friends, any remnants of a social life, my independence, self respect and I will even have to move house shortly. Astonishing as it sounds I am one of the lucky ones because I have a government who will allow me disability support and I have only been ill a short time, others I know have been suffering for 30 years or more. This suffering needs to stop and thankfully progress is finally being made by a private research facility in Reno Nevada. The Whittemore Peterson Institute have made real breakthroughs in the science behind the illness but being a private lab they need community support to continue their research. My life and 17 millions other lives are relying on their continued efforts. We cannot wait forever, our life expectancy is 25 years less than an average healthy persons. For the month of May we are all banding together in an attempt to raise more money for the WPI. I know many of you are struggling financially yourselves and if this is the case for you then please don’t feel obligated to reach into your pocket, however, if you are in a position to spare a few $$$ then there are two ways you can help me and others like me.
Firstly you can purchase a gift card or print from the ‘Art 4 XMRV’ project I have set up. All of the artwork has been created by talented people who are suffering with ME/CFS and 100% of the profits will be forwarded onto the Whittemore Peterson Institute. If this interests you then please visit the shop here - http://www.redbubble.com/people/art4xmrv
If you aren’t really interested in making a purchase but you’d still like to help you can make a donation directly to the WPI by going to their website here - http://www.wpinstitute.org/help/help_donation.html (please mention in the comments box that you came via 'Art 4 XMRV' so they know how you found them)
A few $$$ really can make a difference, please don’t be complacent, if you are in a position to help then PLEASE step up to the plate and do so. Any donation will be GREATLY appreciated !!
Thanks for reading :-)