Friday, September 24, 2010
Tax return & Testing
I got my tax return this week. Because I worked only 5 months last year before I got really sick I was able to get most f the tax I had paid back - $3000. I have decide to spend all or as much as needed on getting more tests done. There are zillions of things to test for and so this week I am trying to work out what tests I think are important for me to have and which ones are actually possible to get. I was keen to get tested for XMRV, I know it’s early days in terms of the available testing protocols etc but it might at least let me stop thinking about if XMRV is relevant to me. The problem is I can’t find a way to get tested from Australia. I emailed VIP Dx and they said that they are not able to offer testing to people in Australia. I did see on a forum somewhere though that a person in New Zealand had been tested through VIP Dx, so …..? If anyone has any info on how to get tested then please let me know.
I am also thinking I’d like to get a SPECT scan done which tests for blood flow to and around the brain. I know Dr Hyde believes that if one of the arteries that carries blood to your brain (I think you have 3?) is blocked this alone can be responsible for CFS in some people.
I know I have some gut problems and I personally believe that whatever those issues are they contribute largely to my symptoms. If I have a day where I feel constipated for example then my malaise and muscle pain and flue like symptoms are through the roof, so that is something that really needs further exploration. I am currently on a Candida diet and I can see that something’s happening due to that. I have come out in big pimple type things all over my body, not very pretty at the moment but it shows that toxins are escaping through my skin which is a gooood thing! Anyway, so I am thinking I also should get some extensive food allergy testing done which is really really expensive but at least I can then tick that off the list. I know I have food allergy stuff, I have had Celiacs for a long time and am lactose intolerant. My stomach feels uncomfortable or weird or painful every single day in varying degrees so I wouldn’t be surprised if it’s food related.
I have just had some general tests done for bacterial stuff and I was positive for chlamydia pneumoniae. I also was tested for Lyme and Ricketsia but I wont get those results till this week. I would like to get further testing in this area done.
I did try to get an MRI of my brain done a few months ago but the EMR made me so dizzy and sick we had to stop. I am not sure if there is much point in getting it done anyway? I guess it would rule out a tumour?
Is there anything else that anyone can think of that’s important?? It’s such a minefield I know!
In the meantime my plan is to continue with the anti Candida stuff and sit tight. I don’t want to make any real treatment plans until I have all these tests sorted. I don’t want to go down the wrong path. Oh and I meant to say that I got myself some waste high compression stockings for my POTS and they actually do help. I was able to stand for 45 minutes in the kitchen the other day and cook. My legs gave out at that point and I was starting to feel dizzy but previously I could only stand for about 5 minutes maximum. The problem with standing for 45 minutes was I got 2 days of payback because of the stress on my muscles, hahaha you can’t win!
If after all this testing if I have any money left from my tax return I might get either some botox or a boob job, what do you think? Hahahaha!