Thursday, August 19, 2010
At the beginning of this year I was on anti biotics for 2 months. I had been suffering with an ongoing pancreatitis issue and further investigation found a gut bacterial overgrowth issue. This on top of my Celiacs could have been part of the reason that I crashed into full blown CFS. Anyway, while on antibiotics I experienced gradual but significant improvement of all my CFS symptoms as well as the gut bacteria problem. Since stopping the antibiotics I have slowly worsened and experienced new dramas with the onset of POTS and OI.
After talking to my Dr and doing my own research I figured that perhaps I did infact have other bacterial issues that were either causing or impacting upon the CFS. My Dad showed me some articles about the Marshal Protocol which was really interesting. This protocol suggests that for some people their CFS is bacterial based and it addresses how to deal with it. This protocol specifically looks at Mycoplasma type bacteria. I was quite convinced; however I tested negative for Mycoplasma so this particular protocol would hypothetically be of no use to me. My Dr did however email this link for the CPN protocol which is similar in theory but works on a different type of bacteria. I haven’t been tested for this type because there is only one lab in Australia which do the test and when I enquired some time ago they said they were currently not doing it but probably would be again in the future. So ….. it is a possibility. My Dr also said he has had several patients follow the CPN protocol and seen significant improvement. The downside is that most of the people using the protocol are people with MS not CFS and they seem to have lots of trouble with herx or detox etc. Apparently most CFS patients using it have less trouble.
My current plan is to go back on the same antibiotics which I used at the beginning of the year for a few weeks as an experiment and see what happens. I actually started them a week ago and already I have improved. The POTS and OI is just the same but all my other CFS symptoms have been better and I am thankful for that. If I continue to improve over the next 2 weeks then my Dr and I will consider looking more closely that these protocols and similar ones.
Has anyone had experience with these or with antibiotics in general??