Friday, July 2, 2010
Cars, medications and XMRV
I have made a small decision this week, but it’s one that feels like a huge deal. I have taken steps to de-register my car and cancel the insurance on it. I haven’t been able to drive in 6 months and clearly I wont be able to do so anytime in the foreseeable future. It’s just common sense really. Why pay for car registration and insurance on a car that will never leave my garage, in fact why not sell the car?? The thing is, even though I have come to a place of acceptance with this illness I guess there are still little bits of me lurking in the shadows that are saying ‘you’re not really ill, you’ll be up and about again in no time’. I know rationally this is not true but I guess it’s tied into that emotion of hope. De-registering and un-insuring my car is going to save me $1200 a year but it’s also snatches away another symbol that represents my old life and the hope attached to that. I have to do it because the money thing is a BIG thing ….My bank balance is currently going backwards at a rate of about $200 a week, so I need to find ways to trim that down! I’m not ready to sell the car, but maybe that will happen in due course.
On a brighter note (big happy smile goes here). I have settled on some medications/supplements that I believe are helping with many of the day to day symptoms. I am taking Endep at night to help with sleep (I know this is working because I forgot to take it the other night I had a terrible night of cold sweats, nightmares and endless tossing and turning). I am taking Vitamin D capsules which help with muscle dysfunction and pain, PreDop which helps with heart dysfunction (POTS etc), I am also wearing compression stockings to help with this (and they look very fetching). I am taking L-Carnitine which help with brain fog and nerve function and Creon which is a digestive enzyme because my pancreas is in a state of constant inflammation and isn’t working properly. Oh, and I am still getting a Vitamin B injection every 2 weeks which helps with fatigue and malaise (this definatly helps me). As I said, this combination does seem to be helping with each of the day to day symptoms. I’m miles away from being symptom free and I still cannot stand or sit upright for more than 20 minutes without the POTS getting me but it’s real progress and I am happy with that!!!
OK, next on the list ….. XMVR. I don’t know why I allowed myself to get sucked in by all of this. This kind of thing never goes smoothly, obviously there will be no resolution anytime soon …. I’m sure this will eventually be proven to have some significance but until then I reckon we should just go about our business as usual …. and when something is proven and is legitimately published then we can evaluate it.
Lastly, if you haven’t already signed the Justice for CFS/ME sufferers
Petition then please have a look - http://www.gopetition.co.uk/petitions/justice-for-cfs-me-sufferers.html even if you are not in the UK it is still worth signing!!!