Wednesday, July 28, 2010
Beta Blocker crash and BURN!!!
Well after my last post over viewing my symptoms at this stage I have entered a new zone!! NOT a good one. I decided to give beta blockers a go for my orthostaic intolerance problem. Great idea, helps some people, nearly killed me hahaha.
I took a tiny tiny dose 4 nights in a row and by the fifth day I thought I was going to die. I had a severe reaction and they worked in reverse. My blood pressure got much lower and heart rate much higher, terrible headache, nausea, stomach cramps. It also made my body crash in a general sense, all my other CFS symptoms ramped it up.
Obviously I did not take the little pill on the fifth night and I saw my Dr on the 6the 6th day. My Dad had to virtually carry my into the clinic. It was awful.
My Dr (who I think is fantastic) said it was a reaction blah blah blah and I needed to stay horizontal for a few days and start the lots of water and salt thing. This was now officially a full on POTS episode. He also suggested we keep clear of any medications that my body wasn't already familiar with (sounds like a good idea to me). My friend Michael came and spent the next few days with me, feeding me although I felt so rotten I could barely eat. My Dr also suggested I come back in a few days and we try a Saline drip. He said the problem is low blood volume. If you don't have enough blood your blood pressure will be low and your heart beats twice as fast to try and pump it round sufficiently. Made sense to me. So in theory, putting Saline into me would increase the volume of blood and should alleviate the symptoms temporarily. I went and did this a 2 days ago and it was like magic! I instantly felt better and it lasted for almost a full day and although the symptoms came back they are not so severe. I am going today to have another go. Apparently if you do this say twice a week your body starts to recognise that new volume as being normal and will correct the problem itself over time. I think it's worth a go.
Also my Dr has set me up with a POTS specialist to go see in a few days time which is fantastic. It usually take months to get appointments with these people. The POTS guy may or may not have anything to add but it's better I go see him. If he wants to experiment on me them I am going to insist he admit me to hospital to do it. I don't want to be home alone ever again and have a crash like I did last week. It was totally terrifying and has left me with all my symptoms worse than they were previously. I just hope that after a few weeks I come back to baseline and that I get the POTS under control. It's crap not being able to sit up to eat and worse to fall off the toilet because your dizzy!!!!
Oh, and again, thanks everyone who commented on my previous post, it's very much appreciated and fab to know that others have experienced the same issues etc.
Mark, I'd be really keen to talk to you about Stem Cell stuff. Please drop me an email so I can get in touch - email@example.com Cheers!