Friday, June 25, 2010

What about ME?

I'm sure most, if not all of you have already seen this .... but we should keep spreading this around. The film by Susan Douglas:

By Double D Productions: "We would like you to know about our up coming film about ME/CFS titled, WHAT ABOUT ME?

For full info of the film please visit our official website

What About Me? Trailer - UK from Double D Productions on Vimeo.

What About Me? Trailer - USA from Double D Productions on Vimeo.


  1. Oooh, have not seen this. Thanks for posting!

  2. I've just sent them the questionnaire. What do you think about the trailers? Although I am pleased that a documentary is getting made, and it's going to raise A LOT of awareness, I am a bit wary about how dramatic they make it at the beginning. It seems like they're going for shock tactics/scare tactics. Although, I was a bit shocked with what they said- there's a help of a lot of research that governments haven't been paying attention to!

  3. I also thought that the focus was very much on sudden onset and severe patients. I remember during the less severe stages of my gradual onset thinking that I couldn't have CFS because those people are fine one day and bedridden the next. I hadn't been fine for a long time but wasn't completely debilitated so I felt I was not legitimately ill. I think a sudden onset would be incredibly difficult, but gradual onset patients need to get recognition as well before they push themselves to housebound status.


  4. Thanks for sharing this Lee. I had only seen the first trailer...and this one is even more powerful. Knowing the "CFS" truth of its beginning and over twenty year history, will be broadcast gives HOPE that we will get there (as Canada has).

    I do feel uncomfortable with the exclusive focus on XMRV, as there's a good chance there's more than one physiological cause. It would be awful if those who test negative because the testing is not yet perfected, or their ME/CFS is due to a different physiological cause that attacks the neuro-endocrine-immune system, were to be pushed out of the ME/CFS diagnosis and remain in the same nightmarish place of not being believed and/or treated.

    Don't get me wrong though, after twenty years of this illness, to know a documentary like this will be aired, makes me want to get off this sofa and applaud!