Friday, April 9, 2010
Comparing XMRV to HIV is a mistake
This kind of media attention is going to cause hysteria. I have already had one friend say that she cannot visit me because 'it' is apparently like HIV and she doesn't want to risk catching 'it' ..... fanbloodytastic! This media stuff is just gonna cause more isolation and condemnation for those of us who are unfortunately ill ....
I am just old enough to remember the hysteria that occurred in the very early days of HIV. This was largely due to the fact that no one initially knew how it was transmitted. All the media could say at that time was that it was a 'gay' disease, which we now know was totally wrong. The media labeling HIV a gay disease condemned all gay people and it was just awful. I remember walking to work past a factory and having 40 or so workers scream 'AIDS victim' at me, and this happened everyday. I was also spat on, had things thrown out of vehicles at me and beaten up twice and all because the media had hyped the situation up so much that everyone was terrified of gay people in general. For the record I do not have HIV.
We who have CFS DO NOT want to suffer that kind of trauma! I wish the media could be a little more responsible. Yes, there are similarities between XMRV and HIV but not in the way the general public might assume. After all these years if you say HIV some people still automatically think 'filthy dirty unnatural sex acts'. If it turns out that many of us do have XMRV we don't want to be tarred with that misinformed brush. The media need to mention exactly what the common factors between HIV and XMRV are and also talk about how one contracts the virus. As I said, I have already had one friend voice to me that she is scared to visit me in case she catches it .... This is no way to live and I do not want to feel more isolated than I already do!
I do agree that banning blood donation until ore is known is a smart thing to do, my issue is with media coverage that’s all.
What does everyone else think??