Thursday, March 4, 2010
I went back to see my Dr yesterday and I am pleased to say we are starting to make progress in terms of a plan. We haven’t been able to do much up until this point because during all the testing I had to actually get a proper diagnosis we discovered that I had a nasty malabsorption issue. My pancreas does not make the enzymes that it should and this has lead to various gut problems. Obviously there were symptoms but I had just been dismissing them because I have Coeliacs and I had just assumed it was that causing the problem. So … I am on a MEGA dose of anti biotics for a month (which I actually started 2 weeks ago) and these have made my CFS symptoms worse, uuurrrrrhhhgggg …
Once I finish the anti biotics I can start taking Creon which is just an enzyme supplement and that should help with the malabsorption thing.
In terms of CFS I have started on vitamin B injections and that’s it so far. The plan is to wait till my guy is sorted and then start trying treatments and see what I do and don’t have success with. I will most likely be trying things like Amino acids which aren’t overly invasive. I also now have a ‘Care Team’ which incorporates my Dr, an exercise physiologist and psychologist (who both specialize in CFS) and I also have a social worker to sort out any general care issues at home etc. So all I really need now is for Centrelink (social services) to come to the party and give me some sort of pension and I will be able to relax and hopefully make some kind of recovery …..
I am expecting to see the exercise physiologist in 2 weeks and start some kind of graded exercise. I have to admit I’m dead scared to try this because up to this date any movement that raises my heart rate even slightly lands me in bed for a few days …. If anyone has any personal experience, good or bad with graded exercise I’d love to hear it
On a positive note, I actually managed to bake some damper yesterday!!!! Unfortunately the effort involved wiped me out so much that I was unable to eat any, hahaha but maybe I can try it today!!