Sunday, February 28, 2010

Food mmmmm food

Aside from CFS I also have Coeliacs disease and lactose intolerance. I have certainly always suffered with the lactose issue. I can remember sucking down milkshakes when I was a kid and feeling like I was in heaven for about 5 minutes and then feeling like I was gonna be sick .... uuurrrrrrrggghhhhh. But milkshakes are sooo yummy that it always seemed worth the suffering. I hadn't realised that not everyone felt cruddy after drinking milk until maybe 5 years ago.

I have no idea when the gluten issue started but it was probably sometime around 2003 that I first decided to try cutting wheat out of my diet. I certainly did feel better short term but at that stage I had lots of other big stuff going on in my life and I didn't take the diet stuff seriously enough. I think I just kinda suffered in silence for a number of years until I changed Dr's in 2007 and suddenly had someone actually listening to me and responding in a way that made sense. I cut out all gluten and was diagnosed with Coeliacs.

Anyway ... from everything I have read it seems quite common for people with CFS to have autoimmune diseases and food issues, so lucky me!!! hahahaha

I have to say that eating gluten free and dairy free isn't really that difficult. The bigger issue is the expense! Gluten free food is soooo much more expensive, which sucks when you have no income :(

Anybody else had similar experiences?? Let me know :)


  1. I remember how you were after those milkshakes... or glugshakes.
    Rob D

  2. Hi Lee,
    Like you I had a load of symptoms come in before the CFS started in earnest and I think this is quite a common experience. I was referred to a bowel specialist, a bladder specialist, a psychiatrist and a rheumatologist all in the space of about eighteen months. Oh I forgot the gynaecologist.

    I do better off wheat and dairy but am not totally intolerant, as long as I don't overdo it. I know being completely coeliac sucks as we have a family friend with the condition.

    Welcome to the blogosphere by the way. I hope you find as much encouragement and support here as I do. All the best . . .

  3. Your experience of thinking that everyone felt sick after milkshakes reminds me of how I was with most of my symptoms... I thought everyone felt sick through the second half of all workdays but that they were somehow 'better' at dealing with it than I was.

    It sounds like you have a lot to deal with with ceoliacs... if you have access to an Asian grocery store you may find cheaper food such as rice noodles and rice crackers. In other stores rice products seem to be awfully expensive.

    Take care!

  4. Lee -

    I never had any food allergies or intolerances - until I got CFS. Then, I developed lactose intolerance, though it took me a couple of years to figure that out.

    I've adjusted pretty well, though I REALLY miss cheese! I've recently discovered a delicious lactose-free cheese that I can tolerate pretty well, and I've been eating it almost every day! I was so deprived for so long.

    There's another blogger, Lori, whose 16-year old daughter has both CFS and celiac disease. Lori often posts gluten-free recipes and her blog includes links to other gluten-free blogs. You can find her at:


  5. Fab, thanks Sue, I will check out Lori's blog :)

  6. PJ also lives a gluten-free life. She has some good recommendations and often throws in some recipes.