Sunday, February 28, 2010

Food mmmmm food

Aside from CFS I also have Coeliacs disease and lactose intolerance. I have certainly always suffered with the lactose issue. I can remember sucking down milkshakes when I was a kid and feeling like I was in heaven for about 5 minutes and then feeling like I was gonna be sick .... uuurrrrrrrggghhhhh. But milkshakes are sooo yummy that it always seemed worth the suffering. I hadn't realised that not everyone felt cruddy after drinking milk until maybe 5 years ago.

I have no idea when the gluten issue started but it was probably sometime around 2003 that I first decided to try cutting wheat out of my diet. I certainly did feel better short term but at that stage I had lots of other big stuff going on in my life and I didn't take the diet stuff seriously enough. I think I just kinda suffered in silence for a number of years until I changed Dr's in 2007 and suddenly had someone actually listening to me and responding in a way that made sense. I cut out all gluten and was diagnosed with Coeliacs.

Anyway ... from everything I have read it seems quite common for people with CFS to have autoimmune diseases and food issues, so lucky me!!! hahahaha

I have to say that eating gluten free and dairy free isn't really that difficult. The bigger issue is the expense! Gluten free food is soooo much more expensive, which sucks when you have no income :(

Anybody else had similar experiences?? Let me know :)

Saturday, February 27, 2010

In the begining

Hmmm ... well I reckon I should start with some background info about me.
I'm 41 now and until the age of 32 my life was pretty awesome! I was living with my partner of 10 years Robert, I had a great job as a graphic designer, loving family and friends .... it really couldn't have been better.

Decemeber 2000 I came home one day and Robert was laying dead on our bed. WTF? Yep, it was certainly a shock and unfortunatly things just got worse. I lost my job because gay people didn't and still don't have equal rights. My boss sacked me because I needed to have time off to grieve. It was a long road.

In August 2007 (or was it 2008?) I came down with what I thought was a bad flu after overdoing it at the gym. The flu never went away. It took about 4 weeks to settle down but it remained at a low level and from that moment on I only ever was able to work part time.

I had another bout of this 'flu' after one of my best friends had a very serious motorbike accident. He unforunatly had the accident out of town and I felt I needed to be with him (didn't initially know if he was going to live), so I staying in a motel by the hospital for a month or so and then for the next 3 months I spent 4 days a week in Brisbane working and 3 days a week staying with him at the hospital.

Once he was finally released from hospital I became his carer and companion (it was a very dark time for him and I found peace of mind by knowing i was doing my best to help him through). By October 2009 he was pretty much back on his feet and I no longer needed to care for him. It was at this point that my body totally crashed.

I woke up one day with another bout of 'flu' but this time it was so bad I just couldn't move. To my disbelief I went further downhill and early 2010 I found myself in hospital unable to walk or do anything. I had every test imaginable in order to rule out any other possibility. As it turns out it looks like I have Chronic fatige Syndrome, although there is no real diagnostic test so I don't know for sure??

So now I am trying to adapt to a new life. Stay tuned ... I have LOTS to say!!!!